by Erinsads | Sep 6, 2023 | Blog
About twenty years ago my older sister had an episode that almost took her life. Through this, she discovered she had a genetic disorder they called Long QT. At the time it was very foreign to doctors as well as us. Nobody had ever heard of this. Matter of fact, the...
by Erinsads | Jul 25, 2023 | Blog
by Deirdre R. Let her fly, they say. I want to. She will be fine, they say. I want to believe that too. I wake up sometimes in a panic and know which thoughts are breaking through the surface, forcing me awake. Will we make it in time? Will her device work as it...
by Erinsads | Jun 8, 2023 | Blog
Can you tell me about your SADS journey- from diagnosis to where you are now? I’m originally from Guam. Moved to the states with my mom & dad when I was 8 years old. When I was six years old, my mom and I were on our way to a fiesta party. I was in the...
by Erinsads | May 21, 2023 | Blog
Julia | Living with ARVC Santa Rosa, CA | Born January 1992 “This is something I’ve had to deal with every single day for more than two years. I have had to mitigate. Life has really had to change. I came out of this a completely different person.” The Sonoma...
by Erinsads | Apr 14, 2023 | Blog
There’s new, exciting, and groundbreaking research on the horizon for SADS conditions. At the SADS Foundation, we’re working with companies who are almost ready to recruit participants for first-of-their-kind clinical trials for these new therapies. Make sure to fill...
