Rachel | Living with ARVC

Rachel | Living with ARVC                                                     Phoenix, Arizona | Born January 1987   “I am forcing myself to take it easy—which is not easy.” Rachel grabs her tennis racket and heads onto the court. She savors the cool spring air,...

CPVT Awareness: Joey’s Story

Can you tell me a little more about your journey? My first symptoms of any cardiac issues started in August, 2011 while I was on a jog while living in St. Louis. Because I was a competitive athlete my entire life, I thought that I was just out of shape now that I’d...

Brugada Awareness: Doug’s Story

Can you tell me a little bit about your SADS journey?  I have Brugada syndrome that was identified when I had Cardiac Arrest at home, then somehow came out of it. A few years before that I had passed out while wearing a Holter monitor. At first I thought I’d had a...

SCA Awareness: Maeve’s Story

In March of 2018, Maeve collapsed suddenly twenty minutes into softball practice – and went into Sudden Cardiac Arrest. It was her first symptom of an underlying heart problem. Thanks to the quick actions of her coach and trainer – who sprang into action and performed...

LQTS Awareness: Jack’s Story

Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? I remember having episodes in early grade school. I would get in trouble all the time for “daydreaming.” Many decades later this turned out to be Ventricular Tachycardia. I...