ICD Stories: Katie Wildhagen

Can you tell me a little bit about your SADS journey? In the spring of 2000, I went into sudden cardiac arrest. After about four weeks of testing, they finally realized I had Long QT Syndrome. I went for six months without a device. My mom really advocated for me, and...

Celebrating our SADS Moms

This Mother’s Day, we want to give a huge shoutout to all of our SADS moms! Whether you have a SADS condition, or are caring for a child with a cardiac arrhythmia, we want to thank you for being the heart of our families.  Being a mom in a SADS family comes with...

SADS Spotlight: Jaclyn

Name: Jaclyn K. Age: 38 Which SADS condition do you have? LQTS1 How are you treated? Treated with beta blockers from age 14 and AICD implant at age 24 (on my 4th device currently) When were you diagnosed? I was CORRECTLY diagnosed after 9 yrs of fainting and multiple...

One Long QT Journey

By: Jett H. My experience with Long QT Syndrome began at about age 7, or at least I think it did. One of the funny things about this condition is you don’t know for sure if it caused you to lose consciousness if you don’t have an EKG or some other kind of heart...