by Erinsads | Oct 3, 2022 | Blog
Tom and his daughter Meg Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? I’m the first one in my family to have this condition that we know of. I call myself the “mutant” – the one that first had the gene. As a kid,...
by Erinsads | Sep 23, 2022 | Blog
This September, Hailey competed in the national and world amateur divisions for aerial silks. “Doing aerial silks always makes me feel free, like I’m flying,” says Hailey. Aerial silks is a combination of contemporary dance and acrobatics, performed while suspended in...
by Erinsads | May 21, 2022 | Blog
Can you tell me a little bit about your ARVC journey – from diagnosis to where you are today? I had my first symptoms years before my event. I did a VO2 test once, while I was doing triathlons, and a strange heart rate result came back – but because I was young and...
by Erinsads | Apr 25, 2022 | Blog
Can you tell me a little bit about your ARVC journey – from diagnosis to where you are today? I had my first symptom of ARVC at 16 years old when I passed out. My mom called the doctor and he said I was a young, healthy, athletic woman who must have had low blood...
by Erinsads | May 4, 2021 | Blog
This Mother’s Day, we want to give a huge shoutout to all of our SADS moms! Whether you have a SADS condition, or are caring for a child with a cardiac arrhythmia, we want to thank you for being the heart of our families. Being a mom in a SADS family comes with...
