Keona: In Memory of Elijah and Chloe

Can you tell me a little bit about your family’s SADS journey? I have one surviving daughter, who is 14 and has Long QT Syndrome. In my family, we have an aunt with Long QT Syndrome – who is the only reason that I ever knew my son had it, which led to me knowing I had...

Pregnancy Stories: Kellie Moore

My daughter, Sophia, will be four in April. She was born in 2017. I really didn’t have any huge concerns going in. It was just very exciting. But of course, I wanted to be very careful and make sure that we were taking proper precautions as needed. And my OB-GYN...

Holding My Breath

She appears “normal” and healthy on the outside. She does everything your 4 year old does. She laughs the same. She throws a temper tantrum the same. She thinks potty humor is the funniest thing ever just the same. She comes into your room 20 times every night before...

Our Journey of Uncertainty and Hope

My name is Angela and I am married with two children ages 2-1/2 and 6 months. Our journey through serious medical uncertainty started when I got pregnant with my 2-1/2 year old son, Azariah. From the onset of my pregnancy things became complicated. At my antimony scan...