by Erinsads | Jun 8, 2023 | Blog
Can you tell me about your SADS journey- from diagnosis to where you are now? I’m originally from Guam. Moved to the states with my mom & dad when I was 8 years old. When I was six years old, my mom and I were on our way to a fiesta party. I was in the...
by Erinsads | Jun 5, 2023 | Blog
Matt Clark is alive today because of the quick actions of his coworkers – at 40,000 feet in the air. Matt, who was an airline pilot at the time, had no previous medical issues or symptoms of a heart condition before his Sudden Cardiac Arrest (SCA) in 2020. “There was...
by Erinsads | May 21, 2023 | Blog
Julia | Living with ARVC Santa Rosa, CA | Born January 1992 “This is something I’ve had to deal with every single day for more than two years. I have had to mitigate. Life has really had to change. I came out of this a completely different person.” The Sonoma...
by Erinsads | May 15, 2023 | Blog
In June 2023, the SADS Foundation is bringing the ARVC patient community together for a first ever FDA Externally-Led Patient-Focused Drug Development Meeting (EL-PFDD). This meeting gives the FDA and other key stakeholders — including researchers, biopharma...
by Erinsads | Mar 23, 2023 | Blog
Can you tell us a little bit about your SADS journey – from diagnosis to where you are now? I’ve always played competitive sports my whole life. When I was 14, during a preseason, I had a Sudden Cardiac Arrest. I got to the ER right away and got...
