ARVC Awareness: Adam’s Story

Can you tell me a little bit about your family’s ARVC story? The first time our family heard of ARVC was in 2018 when my son, Greg – after the first of five Sudden Cardiac Arrests he’d experience in his lifetime – received the diagnosis. Seventeen years earlier, my...

ICD Stories: Katie Wildhagen

Can you tell me a little bit about your SADS journey? In the spring of 2000, I went into sudden cardiac arrest. After about four weeks of testing, they finally realized I had Long QT Syndrome. I went for six months without a device. My mom really advocated for me, and...

SCA Survivor Stories: Lindsay Casey

On January 13th, 2019, I woke up to a seemingly normal Sunday. I was a healthy, 30 year old mother sharing breakfast with my 11 month old son and my husband, Scott. When I went to get our son ready for church, Scott had a feeling that he needed to come check on us....

Normal Life (except with LQTS)

Sometimes normal life involves taunting my dogs with donuts on a Sunday morning   Sometimes normal life involves having coffee in a hospital after having an ICD pocket revision.    I remember the day I got married.  It was hot and the tulle of my dress was scratchy...