by Erinsads | May 15, 2023 | Blog
In June 2023, the SADS Foundation is bringing the ARVC patient community together for a first ever FDA Externally-Led Patient-Focused Drug Development Meeting (EL-PFDD). This meeting gives the FDA and other key stakeholders — including researchers, biopharma...
by Erinsads | Mar 23, 2023 | Blog
Can you tell us a little bit about your SADS journey – from diagnosis to where you are now? I’ve always played competitive sports my whole life. When I was 14, during a preseason, I had a Sudden Cardiac Arrest. I got to the ER right away and got...
by Erinsads | Mar 15, 2023 | Blog
Madison is one of only 60 people worldwide diagnosed with a rare PPA2 cardiac mutation. This drawing – inspired by her heart journey – is currently a finalist for the Google Doodle 2023 Scholarship, which would provide both Madison and SADS with funds – and help raise...
by Erinsads | Mar 13, 2023 | Blog
Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? It all started in September 2019, when my son, Ruben, was hospitalized – that was the first time we ever heard of Brugada Syndrome. He had a lung infection, and his...
by Erinsads | Mar 8, 2023 | Blog
Can you tell me a little more about your journey? My first symptoms of any cardiac issues started in August, 2011 while I was on a jog while living in St. Louis. Because I was a competitive athlete my entire life, I thought that I was just out of shape now that I’d...
