Raising Awareness: Madison’s Story

Madison is one of only 60 people worldwide diagnosed with a rare PPA2 cardiac mutation. This drawing – inspired by her heart journey – is currently a finalist for the Google Doodle 2023 Scholarship, which would provide both Madison and SADS with funds – and help raise...

Brugada Awareness: Ruben and Grace’s Story

Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? It all started in September 2019, when my son, Ruben, was hospitalized – that was the first time we ever heard of Brugada Syndrome. He had a lung infection, and his...

CPVT Awareness: Joey’s Story

Can you tell me a little more about your journey? My first symptoms of any cardiac issues started in August, 2011 while I was on a jog while living in St. Louis. Because I was a competitive athlete my entire life, I thought that I was just out of shape now that I’d...

ARVC Awareness: Dawn’s Story

Can you tell me a little bit about your SADS journey?  I’ve always been very healthy and athletic, always involved in running or walking. When I was young, I ran track, cross country and participated in a lot of 5K’s and a few Tough Mudders as well as a half...

Brugada Awareness: Doug’s Story

Can you tell me a little bit about your SADS journey?  I have Brugada syndrome that was identified when I had Cardiac Arrest at home, then somehow came out of it. A few years before that I had passed out while wearing a Holter monitor. At first I thought I’d had a...