LQTS Awareness: Marjaan’s Story

Can you tell me a little bit about your SADS journey?  I’ve always fainted for no reason, maybe once or twice a year. It was either unprovoked or something simple such as tripping, getting hurt, or even being stung by a bee and I would faint.  Growing up, there...

LQTS Awareness: Stephanie’s Story

Can you tell me a little bit about your SADS journey? I had passed out a few times as a teen. When I was 18, I had been home alone, sick all week. I went into school for the day that week and was walking up the stairs. I remember seeing dots and being told that I had ...

Family Health History Matters

Family Health History Month is a national initiative that encourages families to share their medical history with relatives who may also be affected. We’re spotlighting stories of families for whom genetic testing, and talking about family health history, was...

LQTS Awareness: Dick’s Story

Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? In 1991, I was a single dad living in Houston. I was a minister with a great church, a daughter at Baylor University, a 15-year-old son and his 13-year-old brother. My...

Raising Awareness: Jordan’s Story

Jordan was a happy, healthy, and beloved 26-year-old when he died suddenly from an undiagnosed SADS condition in November of 2019. “I had never even heard of SADS conditions until we lost Jordan and read the acronym ‘SADS’ on the coroner’s report,” says his mother,...