Fundraiser Spotlight: Stephanie

Can you tell me about your family’s SADS journey, from diagnosis to where you are today? When I was 30 years old, I had a Sudden Cardiac Arrest. I had no prior knowledge that I had a heart condition. I was six weeks postpartum at the time from my fourth child, and my...

SCA Awareness Month: Eliott’s Story

When Eliott was just nine years old, he had a Sudden Cardiac Arrest (SCA) at an early-morning soccer game. Thanks to the quick action of a pediatric ICU doctor who happened to be watching the game, Eliott received life-saving CPR – and was diagnosed, after a full day...

Tom’s CPVT Story

Tom and his daughter Meg Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? I’m the first one in my family to have this condition that we know of. I call myself the “mutant” – the one that first had the gene. As a kid,...

LQTS Awareness: Jackie’s Story

Jimmy, Jackie’s son Crissy, Jackie’s daughter Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? It was so common for our family to fall over having seizures, and back in the 1960s, they weren’t thinking...

ARVC: Stories from the Community

  Lizzie Name: Lizzie How and when were you diagnosed? I was diagnosed with ARVC in the middle of a career of ultramarathon running at the age of 31. I started to develop shortness of breath and weakness in my legs during my training runs, and not long after that I...