Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
Our Family’s Long QT Syndrome Story
by Marsha Peterson After my sister, SM lost her last baby at birth, she was diagnosed with Long QT Syndrome. She had been passing out for unknown...
Remembering Alyssa Richardson
Age 25 · Massachusetts "I don't want people to stop hearing her name. I want everyone to say her name." – Rachel, Alyssa’s friend Alyssa Richardson...
“Our Triple S Girl: Smart, Sweet, and Sassy” | Nana’s Story
By Marie A. (Nana's mother) Published February 27, 2026 | 5 minute read Delyth “Nana” Arthur was a bright, joyful little girl whose curiosity and...
Back in the Saddle with a New Heart: Jessica’s ACM Story
By Jessica V. and the SADS Foundation Published December 2, 2025 | 15 minute read Jessica swings into the saddle and heads out with her daughter for...
Tracing Roots, Honoring Lives: What Being My Family Historian Taught Me About Health and Healing
Growing up with photo albums, I discovered how my family moved through history - and how their stories still shape me. Even when memories are...
Racing Forward: Alex Gasper’s Journey from WPW to Ironman and Medicine
From childhood fear to Ironman finisher and future physician, Alex's journey with Wolff-Parkinson-White (WPW) Syndrome shows the power of early...
Finding Strength in the Unknown: Juliana’s Journey with Brugada Syndrome
When 25-year-old Juliana from Switzerland was diagnosed with Brugada Syndrome - a rare heart condition that can cause sudden cardiac arrest - she...
“Pushing the Boulder Over the Mountain”: Matt’s ARVC Journey
Matt’s first symptom was Sudden Cardiac Arrest; his next act is resilience, as he learns to live - and dance - safely with ARVC. By: The SADS...
Finding Strength, Despite the Storm | Dalia’s Long QT Syndrome Story
After years of fainting episodes and misdiagnoses, Dalia discovered she was living with Long QT Syndrome - and turned her journey into one of...
“It can happen to anyone, at any age” | Ammon’s Sudden Cardiac Arrest Story
Ammon was diagnosed with a genetic heart condition called CPVT at just five years old after experiencing Sudden Cardiac Arrest (SCA) while playing...
Two Teens, Two Families, One Lifesaving Message: CPR & AEDs Save Lives
In neighboring Michigan communities, two families who had never met now share a lifelong bond - one forged in the most unexpected way: sudden...
Living with Brugada Syndrome | Michael’s Story
written by Michael Grivas I am 27 years old and I come from Greece. Four years ago… my life suddenly changed. When I learned that I have Brugada...