by kymera_editor | Mar 18, 2019 | CPVT, SADS Spotlight
Chevy with his sister Zoiey Name: Chevy Mathis Age: 10Which SADS condition do you have? CPVT When were you diagnosed? February 2017 after a cardiac arrest How are you treated?Nadolol 2x daily, Flecainide 3x daily, and his “Iron Man Arc Reactor” AKA- his ICD What...
by kymera_editor | Mar 14, 2019 | Long QT Syndrome, SADS Spotlight
Carter (left), mom Katie, and John (right) Name: John and Carter Cox (Twins) Age: 3Which SADS condition do you have? Long QT type 2 When were you diagnosed? Birth How are you treated? Propranolol three times day. Potassium two times a day. AED with...
by kymera_editor | Mar 13, 2019 | Long QT Syndrome, Managing Multiple Diagnoses
We first contacted SADS when my middle child was 8 years old and had several “episodes” that looked like seizures. We had no idea what the problem was. His brain scans were good. His pediatrician told me “oh, all 8 year olds faint now and then”,...
by kymera_editor | Mar 12, 2019 | Brugada Syndrome, Sudden Cardiac Arrest
The Hernandez family March is Brain Injury Awareness Month. Brain injuries can result from many causes. One of these causes is anoxia (lack of oxygen) as a result of a SCA. As many as 18% of those who survive an out of hospital SCA have a moderate...
by kymera_editor | Mar 8, 2019 | Long QT Syndrome, SADS Spotlight
Name: Danielle and Alanna Mundondo Age: 34 and 4 Which SADS condition do you have? Long QT Syndrome Type 2 When were you diagnosed? Age 19 via abnormal ECG and genetic testing for Danielle. At birth via cord blood genetic testing for Alanna. How are you...
