by kymera_editor | Sep 22, 2020 | CPVT, SADS Kids, SADS Spotlight, SADSConnect, Sports/Exercise
Name: Karly Gonthier Age: 13 Which SADS condition do you have? CPVT When were you diagnosed? June, 2019 How are you treated? (Beta blocker, ICD, etc.) Beta Blocker, calcium channel blocker Personal Questions How/when were you diagnosed? The day after my 13th...
by kymera_editor | Jul 17, 2020 | Advocacy, Connecting with others, Long QT Syndrome, SADS Spotlight, Sports/Exercise
My name is Jessica, I am 22 years old and I have LQTS. Throughout my childhood and adolescence, I was involved in many activities, including cheerleading, softball, and my high school’s marching band. While these activities were fun, they caused me to suffer from...
by kymera_editor | Jul 10, 2020 | Awareness, CPR, Long QT Syndrome, SADS Kids, SADS Spotlight, SADSConnect, Sports/Exercise
Name: Ayden Age: 13 Diagnosis: Long QT type 1; diagnosed at age 12 I was really sick and dehydrated my mom took me to the doctor and they sent me to the ER to get IV fluids. The doctor did an ECG to see if she could give me some medicine to stop puking and noticed an...
by kymera_editor | Jun 5, 2020 | AEDs, CPR, CPR and AED Awareness Week, Sudden Cardiac Arrest
Sarah with her family My name is Sarah, I am 55 years old, living in Saskatchewan, Canada. On December 28th, 2018, I was attending the memorial service for my mother-in-law along with my immediate and a few extended family members. I had just finished my tribute and...
by kymera_editor | Jun 5, 2020 | AEDs, CPR, CPR and AED Awareness Week, Long QT Syndrome, Uncategorized
Aurora went into tachycardia in February 2019, shortly after turning 2. She has Long QT Syndrome and she had RSV and rhinovirus. It was 3AM and my husband and I used our AED and CPR to save her life before paramedics arrived. She is now...
