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Back in the Saddle with a New Heart: Jessica’s ACM Story

by SADS Foundation | Dec 2, 2025 | Blog

By Jessica V. and the SADS Foundation Published December 2, 2025 | 15 minute read Jessica swings into the saddle and heads out with her daughter for a 50-mile endurance horseback ride. From the outside, it might look like any other long-distance ride – but Jessica is...

Tracing Roots, Honoring Lives: What Being My Family Historian Taught Me About Health and Healing

by SADS Foundation | Nov 11, 2025 | Blog

Growing up with photo albums, I discovered how my family moved through history – and how their stories still shape me. Even when memories are painful – especially with SADS and loss – looking back becomes an act of respect: acknowledging the whole...

Finding Strength in the Unknown: Juliana’s Journey with Brugada Syndrome

by SADS Foundation | Oct 23, 2025 | Blog

When 25-year-old Juliana from Switzerland was diagnosed with Brugada Syndrome – a rare heart condition that can cause sudden cardiac arrest – she turned her fear and uncertainty into purpose, finding strength through connection and raising awareness to...

“Pushing the Boulder Over the Mountain”: Matt’s ARVC Journey

by SADS Foundation | Oct 23, 2025 | Blog

Matt’s first symptom was Sudden Cardiac Arrest; his next act is resilience, as he learns to live – and dance – safely with ARVC.  By: The SADS Foundation and Matt K. Published October 24, 2025 | 15 min read “You will be able to push the boulder over the...

Finding Strength, Despite the Storm | Dalia’s Long QT Syndrome Story

by SADS Foundation | Oct 13, 2025 | Blog

After years of fainting episodes and misdiagnoses, Dalia discovered she was living with Long QT Syndrome – and turned her journey into one of resilience, advocacy, and hope. By: The SADS Foundation and Dalia B. Published October 20, 2025 | 10 min read “I don’t...
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