John’s CPVT Story

John is a happy, compassionate, and bright 10-year-old boy who loves science and learning how things work – and who almost lost his life because of an undiagnosed heart condition called CPVT. “John’s very first symptom of a heart issue, as it is for many families with...

Martin’s LQTS Story

Martin – also known as Fast Heart Mart – was diagnosed with Long QT Syndrome (LQTS) at the age of 17 after six years of searching for answers. Now, he’s a professional musician who wants others with LQTS to know that this genetic diagnosis “doesn’t mean the end” – and...

Katherine’s SCA & HCM Story

Katherine could tell that something was wrong with her heart – but doctors kept telling her that she was a perfectly healthy eighth grader. After experiencing Sudden Cardiac Arrest (SCA) in a CrossFit parking lot, Katherine is sharing her story to spread awareness –...

Preparing for Your Surgery

Preparing for Your Surgery If you have a SADS condition, you may be looking at having several types of surgeries for your heart. Below, you’ll find a guide to preparing for your heart surgery, and what each surgery entails. General Tips: Preparing for a Surgery...