by Erinsads | Feb 27, 2023 | Blog
Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? I remember having episodes in early grade school. I would get in trouble all the time for “daydreaming.” Many decades later this turned out to be Ventricular Tachycardia. I...
by Erinsads | Feb 24, 2023 | Blog
Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? I was diagnosed with Long QT Syndrome Type 1 when I was 22 years old. I was born with LQTS but wasn’t aware of it, nor was my family. The reason we discovered my LQTS was...
by Erinsads | Feb 9, 2023 | Blog
Did you know that one important part of keeping your heart healthy this National Heart Month is by learning more about what’s in your genes? Take it from Julia – who was diagnosed in 2020 with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC), a genetic disease...
by Erinsads | Feb 8, 2023 | Blog
In November 2022, we asked people to share their stories as they took our genetic testing survey – and we are so grateful for everyone who talked with us, wrote down their story, or left us a voicemail! Here are some of the stories shared by the SADS community....
by Erinsads | Jan 30, 2023 | Blog
Jason | Living with ARVC West Newbury, Massachusetts | Born July 1984 “I used to hike three or four peaks in a day and not really see what’s going on. Now, I spend more time smelling the flowers on a leisurely jaunt—looking...
by Erinsads | Jan 18, 2023 | Blog
Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? It started when I had what they call Sudden Cardiac Death at a CrossFit gym. I was doing a workout with my 16 year old son, which sucked to have him witness. I remember...
