by Erinsads | Mar 1, 2023 | Blog
Can you tell me a little bit about your family’s SADS journey – from diagnosis to where you are now? Our journey is about my son, Logan. He passed away a little over three years ago on October 31, 2019. Logan had just turned 19 and was off at college. He...
by Erinsads | Mar 1, 2023 | Blog
Can you tell me a little bit about your family’s SADS journey? My daughter, Karly, had her first Sudden Cardiac Arrest at the age of ten. She was a competitive soccer player and dancer at the time, and was at a soccer tournament up at Lake Tahoe. In between games, she...
by Erinsads | Feb 27, 2023 | Blog
Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? I remember having episodes in early grade school. I would get in trouble all the time for “daydreaming.” Many decades later this turned out to be Ventricular Tachycardia. I...
by Erinsads | Feb 24, 2023 | Blog
Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? I was diagnosed with Long QT Syndrome Type 1 when I was 22 years old. I was born with LQTS but wasn’t aware of it, nor was my family. The reason we discovered my LQTS was...
by Erinsads | Feb 9, 2023 | Blog
Did you know that one important part of keeping your heart healthy this National Heart Month is by learning more about what’s in your genes? Take it from Julia – who was diagnosed in 2020 with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC), a genetic disease...
by Erinsads | Feb 8, 2023 | Blog
In November 2022, we asked people to share their stories as they took our genetic testing survey – and we are so grateful for everyone who talked with us, wrote down their story, or left us a voicemail! Here are some of the stories shared by the SADS community....
