by SADS Foundation | Oct 16, 2019 | Blog
At just eight months old, Lila survived sudden cardiac arrest with no warning — and ten years later, she’s thriving, reminding families that connection and community can make all the difference. By Jen W. and the SADS FoundationUpdated February 23, 2026 | 4 minute...
by Erinsads | Aug 19, 2019 | Blog
by Alexis H. Since receiving my diagnosis of LQTS Type 5 at the age of 12, I had always wanted to go to a heart camp. The children’s hospital where I received care in Alberta, Canada had posters for a heart camp in California on the wall but when I asked my doctor...
by SADS Foundation | Mar 18, 2019 | Blog
After years of fainting episodes and misdiagnoses, Chevy’s family finally uncovered Catecholaminergic Polymorphic Ventricular Tachycardia—and began rebuilding his life with strength and hope. By Chelsi M. and The SADS FoundationUpdates February 19 2026 | 7 min read...
by Erinsads | Jun 15, 2018 | Blog
by Rachelle C. Seeing the doctor is always stressful. It’s even more so when you’re from out of state (like me) or even out of country. It can be very overwhelming. I admin a group and we get a lot of questions from people asking what it’s like, where to stay, where...
by SADS Foundation | Dec 4, 2017 | Blog
A mother with Long QT Syndrome shares how beginning beta blocker treatment at birth gave her family peace of mind—and helped her daughter thrive from the very start. By Kellie MooreUpdated February 19 2026 | 6 min read “I do not have a sick baby. Yes, my daughter has...
by Erinsads | Aug 27, 2017 | Blog
My name is Angela and I am married with two children ages 2-1/2 and 6 months. Our journey through serious medical uncertainty started when I got pregnant with my 2-1/2 year old son, Azariah. From the onset of my pregnancy things became complicated. At my antimony scan...
