by Erinsads | Aug 19, 2019 | Blog
by Alexis H. Since receiving my diagnosis of LQTS Type 5 at the age of 12, I had always wanted to go to a heart camp. The children’s hospital where I received care in Alberta, Canada had posters for a heart camp in California on the wall but when I asked my doctor...
by Erinsads | Jun 15, 2018 | Blog
by Rachelle C. Seeing the doctor is always stressful. It’s even more so when you’re from out of state (like me) or even out of country. It can be very overwhelming. I admin a group and we get a lot of questions from people asking what it’s like, where to stay, where...
by Erinsads | Dec 4, 2017 | Blog
By: Kellie M. When I was pregnant with my daughter, I knew there was a chance she would have Long QT Syndrome. I have it, both of my siblings have it, and my mom has it. So do my grandma and some of her siblings. For us, Long QT Syndrome is a normal part of life. So...
by Erinsads | Aug 27, 2017 | Blog
My name is Angela and I am married with two children ages 2-1/2 and 6 months. Our journey through serious medical uncertainty started when I got pregnant with my 2-1/2 year old son, Azariah. From the onset of my pregnancy things became complicated. At my antimony scan...
by Erinsads | Aug 17, 2017 | Blog
A list of abbreviations commonly used in cardiology DFT- Defibrillation threshold testing VT- Ventricular tachycardia VF- Ventricular fibrillation AF- Atrial fibrillation EKG/ECG- Electrocardiogram PVC- Premature Ventricular Contraction PAC- Premature Atrial...
by Erinsads | Jun 29, 2017 | Blog
Questions to ask at electrophysiologist/ cardiologist appointments Why am I consider at this risk level at the current time? Will my risk level change overtime? Or will the risk level remain the same all the time? What are the treatment options? Why am I being started...
