by Erinsads | Nov 16, 2022 | Blog
Genevie’s children have LQTS, which was only discovered through genetic testing. Her youngest daughter had more severe symptoms of LQTS, and went through an extensive testing panel – which is how her husband learned he had LQTS Type 5. Sometimes you can’t tell...
by Erinsads | Nov 16, 2022 | Blog
Family Health History Month is a national initiative that encourages families to share their medical history with relatives who may also be affected. We’re spotlighting stories of families for whom genetic testing, and talking about family health history, was...
by Erinsads | Nov 16, 2022 | Blog
Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? In 1991, I was a single dad living in Houston. I was a minister with a great church, a daughter at Baylor University, a 15-year-old son and his 13-year-old brother. My...
by Erinsads | Nov 14, 2022 | Blog
In 2001, Mike’s sister, Jackie, passed away at the age of 31 from undiagnosed ARVC. Mike, his brother, and Jackie’s husband, Adam, formed a support network for affected individuals and their families. Adam is cycling across Canada to raise awareness of ARVC, connect...
by Erinsads | Nov 10, 2022 | Blog
Jordan was a happy, healthy, and beloved 26-year-old when he died suddenly from an undiagnosed SADS condition in November of 2019. “I had never even heard of SADS conditions until we lost Jordan and read the acronym ‘SADS’ on the coroner’s report,” says his mother,...
by Erinsads | Nov 10, 2022 | Blog
Can you tell me about your family’s SADS journey, from diagnosis to where you are today? When I was 30 years old, I had a Sudden Cardiac Arrest. I had no prior knowledge that I had a heart condition. I was six weeks postpartum at the time from my fourth child, and my...
