Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
SADS Spotlight: Joey
Name: Joseph “Joey” ReinelAge: 4 Which SADS condition do you have? CPVTWhen were you diagnosed? Age 3 - after surviving a SCAHow are you treated?...
SADS Spotlight: Alexis
Name: Alexis Holmgren Age: 18 Which SADS condition do you have? Long QT Syndrome Type 5 When were you diagnosed? In 2013 at age 12 How are you...
LQTs, 504s, & AEDs
As a LQT patient-parent as well as an educator-advocate of students facing chronic medical conditions in a large school district, I have learned...
A Diagnosis for Annie
Annie was born in May 2005 eight weeks early, and with kidney problems and unilateral talipes (club foot). Before her first birthday,...
Just Keep Moving
If you can't fly. Run.If you can't run. Walk. If you can't walk. Crawl.But by all means keep moving. ~Martin Luther King Jr. Nothing about a new...
Holding My Breath
She appears “normal” and healthy on the outside. She does everything your 4 year old does. She laughs the same. She throws a temper tantrum the...
SADS Spotlight: Jaren
Name: Jaren BergAge: 10Which SADS condition do you have? LQTS Type 1 When were you diagnosed? November 2017 at age 9 How are you treated? Nadolol...
SADS Spotlight: Alison
Alison and her husband after competing in the 2018 USAT Duathlon National Championship! Name: Alison HegeAge: 30Which SADS condition do you...
Chevy’s Fight for Answers
After years of fainting episodes and misdiagnoses, Chevy’s family finally uncovered Catecholaminergic Polymorphic Ventricular Tachycardia—and began...
SADS Spotlight: John and Carter
Carter (left), mom Katie, and John (right) Name: John and Carter Cox (Twins) Age: 3Which SADS condition do you have? Long QT type 2 When were...
Our LQTS Story
We first contacted SADS when my middle child was 8 years old and had several “episodes” that looked like seizures. We had no idea what the...
Through Love and Faith: An Interview with Rebecca Hernandez
The Hernandez family March is Brain Injury Awareness Month. Brain injuries can result from many causes. One of these causes is anoxia (lack of...