Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
Navigating Cardiovascular Health Through Genetic Counseling: The Story of a Family’s Journey with Long QT Syndrome
When Melissa was getting ready to start a family, she wanted to know whether her child would carry the same genetic variant that she had – for a...
#ThisisBrugada: Shane’s Story
Shane was diagnosed with Brugada Syndrome in March of 2021 after ending up the E.R. for a stomach bug. He had an ICD installed two months later. “I...
Susan’s Heart Failure and Transplant Story
Susan’s first symptom of a heart problem was a Sudden Cardiac Arrest in her driveway as she was getting ready to leave for work in 2015. It took...
SADS Exercise/Movement Challenge Questionnaire
Questionnaire: What exercise did you accomplish this week? How did you feel? Leave your answers below! Be on the lookout for a SADS water bottle...
Heart Month Stories: Ishani’s LQTS Story
A normal summer day at the pool turned into a rare genetic heart condition diagnosis for thirteen year old Ishani. After feeling dizzy, Ishani...
SADS Exercise Challenge Sign Up
Welcome to The SADS Exercise/Movement Challenge! We are encouraging the SADS community to incorporate healthy movement throughout the month of...
SADS Exercise/Movement Challenge Forum
For the final week, we want you to choose the activity. Go on a bike ride, do some jumping jacks, or just turn on some music and dance, etc. And...
David’s ARVC Story
In November of 2021, six weeks after hiking Mount Whitney – the highest mountain in the contiguous United States – David fainted while taking his...
ARVC Awareness: Nathan’s Story
During a typical morning run in August of 2022, Nathan became lightheaded and had to lie down on the sidewalk. After he was found by two other...
From Cycling to Dog Agility: Kathy’s ARVC Journey
For many years before her diagnosis, Kathy’s heart beat in a strange rhythm – but she always chalked it up to being a competitive athlete. After...
#ThisisACM: Cassidy’s ACM Story
At just seventeen years old, Cassidy – a competitive athlete – was diagnosed with ACM (arrhythmogenic cardiomyopathy). She experienced her first...
Annie Lucatuorto
Annie Lucatuorto, daughter of Cathleen and board member Anthony, had a cardiac arrest while swimming at a YMCA when she was ten years old. After...