Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
Broken Hearts: Racing Against a Deadly Disorder
Thirty-nine. That’s how old I am. It’s also the age when my father died. Losing my dad when I was just 11 years old has had a profound impact on...
SADS EL-PFDD Testimonials
We need to hear YOUR voice, YOUR story, YOUR experience with LQTS so we can represent the scope of impact this condition makes on families and...
Navigating Cardiovascular Health Through Genetic Counseling: The Story of a Family’s Journey with Long QT Syndrome
When Melissa was getting ready to start a family, she wanted to know whether her child would carry the same genetic variant that she had – for a...
#ThisisBrugada: Shane’s Story
Shane was diagnosed with Brugada Syndrome in March of 2021 after ending up the E.R. for a stomach bug. He had an ICD installed two months later. “I...
Susan’s Heart Failure and Transplant Story
Susan’s first symptom of a heart problem was a Sudden Cardiac Arrest in her driveway as she was getting ready to leave for work in 2015. It took...
SADS Exercise/Movement Challenge Questionnaire
Questionnaire: What exercise did you accomplish this week? How did you feel? Leave your answers below! Be on the lookout for a SADS water bottle...
Heart Month Stories: Ishani’s LQTS Story
A normal summer day at the pool turned into a rare genetic heart condition diagnosis for thirteen year old Ishani. After feeling dizzy, Ishani...
SADS Exercise Challenge Sign Up
Welcome to The SADS Exercise/Movement Challenge! We are encouraging the SADS community to incorporate healthy movement throughout the month of...
SADS Exercise/Movement Challenge Forum
For the final week, we want you to choose the activity. Go on a bike ride, do some jumping jacks, or just turn on some music and dance, etc. And...
David’s ARVC Story
In November of 2021, six weeks after hiking Mount Whitney – the highest mountain in the contiguous United States – David fainted while taking his...
ARVC Awareness: Nathan’s Story
During a typical morning run in August of 2022, Nathan became lightheaded and had to lie down on the sidewalk. After he was found by two other...
From Cycling to Dog Agility: Kathy’s ARVC Journey
For many years before her diagnosis, Kathy’s heart beat in a strange rhythm – but she always chalked it up to being a competitive athlete. After...