by kymera_editor | Jan 30, 2020 | Advocacy, Brugada Syndrome, Connecting with others, Heart Hero, ICD, Parenting, Rare Disease, SADS Spotlight, Sports/Exercise
Name: Tisha M. Age: 36 y/o Which SADS condition do you have? Brugada Syndrome When were you diagnosed? 12/27/19 How are you treated? (Beta blocker, ICD, etc.) ICD How/when were you diagnosed? I went to Urgent Care on 12/27/19 with complaints...
by kymera_editor | Dec 2, 2019 | Awareness, Brugada Syndrome, ICD, Sudden Cardiac Arrest
Sissy Sullins living and thriving with Brugada My name is Sissy. I was diagnosed with Brugada Syndrome at age 39. I am now 60 years old. I will begin my story with my daddy. My daddy was very healthy all through his youth. All that anyone could ever remember...
by kymera_editor | Oct 21, 2019 | Brugada Syndrome, CPR, ICD, Online Patient Communities, SADS Spotlight, Sudden Cardiac Arrest
Name: Dave Whelan Age: 57 When was your SCA? Feb 10, 2012Which SADS condition do you have? Brugada Syndrome How are you treated? ICD and regular cardiology follow up Can you tell us about your SCA? My SCA occurred while working on a remote mine site in the...
by kymera_editor | Sep 19, 2019 | Awareness, Brugada Syndrome, SADS Spotlight
Name: Kaitlyn Miller Age: 29 Which SADS condition do you have? Brugada SyndromeWhen were you diagnosed? June 2019 How are you treated? ICD How/when were you diagnosed?I was diagnosed after passing out while in the car with my family. My EKG showed...
by kymera_editor | Mar 12, 2019 | Brugada Syndrome, Sudden Cardiac Arrest
The Hernandez family March is Brain Injury Awareness Month. Brain injuries can result from many causes. One of these causes is anoxia (lack of oxygen) as a result of a SCA. As many as 18% of those who survive an out of hospital SCA have a moderate...
by kymera_editor | Feb 26, 2019 | Brugada Syndrome, Heart Hero
Terry Bishop was nominated as a Heart Hero by his wife, Whitney. He lives with Brugada Syndrome. Congratulations on being a Heart Hero, Terry! Terry has been so strong through this learning experience we have...