by Erinsads | Feb 2, 2024 | Advocacy, Awareness, Blog, Forum, Raising Awareness, Sports/Exercise
Welcome to The SADS Exercise/Movement Challenge! We are encouraging the SADS community to incorporate healthy movement throughout the month of February. The challenge starts February 1st and will run for the entire month. Want to connect with others who are...
by Erinsads | Jan 10, 2024 | Advocacy, Awards, Awareness, Blog, Connecting with others, Long QT Syndrome
Annie Lucatuorto, daughter of Cathleen and board member Anthony, had a cardiac arrest while swimming at a YMCA when she was ten years old. After genetic testing revealed LQTS, he got in touch with the SADS Foundation – and had other family members tested, resulting...
by kymera_editor | Apr 14, 2022 | Advocacy, ARVC, Rare Disease, Research
How did you get involved with the SADS Foundation? I was at the University of Colorado in late 1999, finishing my residency in internal medicine. In my third year, I was a genetics and cell biology major. I designed a rotation where I could go out to genetic clinics –...
by kymera_editor | Feb 23, 2022 | Advocacy, Long QT Syndrome, Parenting, SADS Kids, Sports/Exercise
Alexis and her mother, Meredith, at Mayo ClinicAlexis competing this FebruaryAlexis with coach Lee Eves MitchellAlexis Loveless Can you tell me a little bit about your SADS journey – from diagnosis, to your dance competition this past Friday? Alexis: I was shadowing a...
by kymera_editor | Sep 13, 2021 | Advocacy, Awareness, Long QT Syndrome, Parenting, Schools
Can you tell me a little bit about your family’s SADS journey? In utero, our doctors thought that my daughter Madison had heart block, and I was sent to a specialist. They confirmed that it was not a heart block – she just had a low heart rate. When Madison was...
by kymera_editor | Apr 12, 2021 | Advocacy, ICD, Long QT Syndrome, Sports/Exercise
Growing up I suffered from frequent fainting spells and would talk about my heart “feeling funny” while playing competitive sports. I was a happy and healthy kid who didn’t complain much, so my mom immediately took me to a cardiologist when I first mentioned this. A...
