• Follow
  • Follow
  • Follow
  • Follow
  • Follow
  • Follow
  • About Us
  • Contact Us
  • SADS Conditions
    • Acquired LQTS
    • Arrhythmogenic Right Ventricular Dysplasia/Cardiomyopathy (ARVD/C)
    • Brugada Syndrome
    • Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT)
    • Long QT Syndrome (LQTS)
    • Short QT Syndrome (SQTS)
    • Timothy Syndromes
    • Wolff Parkinson White (WPW)
  • If You Suspect
    • Find a Doctor
    • Lost a Loved One
    • Roadmap
    • Talking with Your Family
    • Genetic Testing
    • Living With SADS Webinars
  • Get Involved
    • Annual Conference
    • Ways to Give
    • Drive Awareness
    • Volunteer
    • Advocate
    • Participate in a Study
    • Connect with Community
  • Research
    • Our Research Impact
    • Get Involved in Research
    • For Researchers
  • Resources
    • Patients & Families
    • Healthcare Professionals
    • Researchers
    • Medical Glossary
  • Drugs to Avoid
U
  • Donate
    • Donate Now
    • Other Ways to Support
Menu
M
Donate
  • SADS Conditions
    • Acquired LQTS
    • Arrhythmogenic Right Ventricular Dysplasia/Cardiomyopathy (ARVD/C)
    • Brugada Syndrome
    • Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT)
    • Long QT Syndrome (LQTS)
    • Short QT Syndrome (SQTS)
    • Timothy Syndromes
    • Wolff Parkinson White (WPW)
  • If You Suspect
    • Find a Doctor
    • Lost a Loved One
    • Roadmap
    • Talking with Your Family
    • Genetic Testing
    • Living With SADS Webinars
  • Get Involved
    • Ways to Give
    • Virtual Conference 2022
    • Drive Awareness
    • Volunteer
    • Advocate
    • Participate in a Study
    • Connect with Community
  • Research
    • Our Research Impact
    • Get Involved in Research
    • For Researchers
  • Resources
    • Patients & Families
    • Healthcare Professionals
    • Researchers
    • Medical Glossary
  • Drugs to Avoid
  • About Us
  • Contact Us
  • Follow
  • Follow
  • Follow
  • Follow
  • Follow

Volunteer Week Spotlight: Carl Barnes

by kymera_editor | Apr 14, 2022 | Advocacy, ARVC, Rare Disease, Research

How did you get involved with the SADS Foundation? I was at the University of Colorado in late 1999, finishing my residency in internal medicine. In my third year, I was a genetics and cell biology major. I designed a rotation where I could go out to genetic clinics –...

Heart Month Awareness: Alexis Loveless

by kymera_editor | Feb 23, 2022 | Advocacy, Long QT Syndrome, Parenting, SADS Kids, Sports/Exercise

Alexis and her mother, Meredith, at Mayo ClinicAlexis competing this FebruaryAlexis with coach Lee Eves MitchellAlexis Loveless Can you tell me a little bit about your SADS journey – from diagnosis, to your dance competition this past Friday? Alexis: I was shadowing a...

SADS Safe Schools: Mandi Chesser

by kymera_editor | Sep 13, 2021 | Advocacy, Awareness, Long QT Syndrome, Parenting, Schools

Can you tell me a little bit about your family’s SADS journey? In utero, our doctors thought that my daughter Madison had heart block, and I was sent to a specialist. They confirmed that it was not a heart block – she just had a low heart rate. When Madison was...

SADS Spotlight: Brooke Spangenberg

by kymera_editor | Apr 12, 2021 | Advocacy, ICD, Long QT Syndrome, Sports/Exercise

Growing up I suffered from frequent fainting spells and would talk about my heart “feeling funny” while playing competitive sports. I was a happy and healthy kid who didn’t complain much, so my mom immediately took me to a cardiologist when I first mentioned this. A...

Jessica Robinson and her story of LQTS

by kymera_editor | Jul 17, 2020 | Advocacy, Connecting with others, Long QT Syndrome, SADS Spotlight, Sports/Exercise

My name is Jessica, I am 22 years old and I have LQTS. Throughout my childhood and adolescence, I was involved in many activities, including cheerleading, softball, and my high school’s marching band. While these activities were fun, they caused me to suffer from...

Lily’s Story of CPVT

by kymera_editor | Apr 23, 2020 | Advocacy, CPVT, Parenting, Sudden Cardiac Arrest

Lily and her sister Charlotte My daughter has CPVT. My daughter, Lily, suffered sudden cardiac arrest while swimming in our pool on July 8, 2012. She went without oxygen for an estimated 11 minutes. Lily continues her recovery from the resulting anoxic brain...
« Older Entries
  • Follow
  • Follow
  • Follow
  • Follow
  • Follow
  • Follow

Office Address

4527 South 2300 East,
Suite 104 Salt Lake City,
UT 84117-4448

Call Our Resource Center

1 (801) 948-0654

Join Our Email List

Sign Up for Updates

Contact Resource Center 5

Contact Us 5

Email Us 5

SADS International 5

© 2020 All Rights Reserved. Designed by Web Sharx.

Brought to you by xmission

  • Privacy Policy
  • Terms of Service

Donate