by kymera_editor | Apr 13, 2018 | Advocacy, Fundraising, Long QT Syndrome, Parenting, Timothy Syndrome
Fundraisers don’t have to be big or expensive to make a difference—they can be as simple as having people over for milk and cookies. That’s something Mary Ann Ciciarelli knows to be true. For the past seven years, her family has hosted a milk-and-cookies fundraiser in...
by kymera_editor | Jul 31, 2017 | Fundraising, ICD, Long QT Syndrome, Sudden Cardiac Arrest
On the morning of June 7th, 2014, our just turned 2-year-old daughter suffered a sudden cardiac arrest in our home. This came as a complete shock to us, as it occurred with no warning whatsoever. Once stabilized in the ambulance in our driveway, she was transported to...
by kymera_editor | Jun 28, 2017 | Fundraising, Long QT Syndrome, Sudden Cardiac Arrest
This is Abrielle Watschke. In 2014, she survived an out of hospital sudden cardiac arrest. Today, she is thriving with Long QT Syndrome. Read the Watschke family’s story here. Donate to the 2017 No Ball at All Campaign in honor of this amazing...
