by kymera_editor | Oct 18, 2021 | CPR, CPVT, ICD, SCA Awareness, SCA Survivor, Sudden Cardiac Arrest
Jacob Collinson Jill Collinson Can you tell me a little bit about your family’s SADS journey? We had no family history – this came out of the blue. Jake started having events at 7. The first one he had was when he was dropped off at a skating rink for a birthday...
by kymera_editor | Sep 10, 2021 | Awareness, ICD, Long QT Syndrome, Sports/Exercise
Can you tell me a little bit about your SADS journey? In the spring of 2000, I went into sudden cardiac arrest. After about four weeks of testing, they finally realized I had Long QT Syndrome. I went for six months without a device. My mom really advocated for me, and...
by kymera_editor | Jul 9, 2021 | Awareness, CPVT, Grief and Loss, ICD, SCA Survivor
Could you talk a little bit about your family’s SADS journey? My story begins on June 11, 2001, when my mom had a Sudden Cardiac Arrest. And unfortunately, she passed away. When you’re six years old, and you lose a parent unexpectedly, there are so many unanswered...
by kymera_editor | Jun 9, 2021 | Awareness, ICD, Long QT Syndrome, SADS Spotlight, Sports/Exercise
At the age of 15 years old, I was a three season athlete in high school: soccer, basketball, and track and field. They were a huge part of how I defined myself – I loved sports. I was in a track and field hurdle event, got dizzy at the finish line, and almost passed...
by kymera_editor | Apr 12, 2021 | Advocacy, ICD, Long QT Syndrome, Sports/Exercise
Growing up I suffered from frequent fainting spells and would talk about my heart “feeling funny” while playing competitive sports. I was a happy and healthy kid who didn’t complain much, so my mom immediately took me to a cardiologist when I first mentioned this. A...
by kymera_editor | Mar 17, 2021 | Awareness, Connecting with others, ICD, Long QT Syndrome, Managing Multiple Diagnoses
This is a photo of my girls and I when I was asked to speak at a fundraiser for a gala. I spoke on some of my patient experience. The money raised went to help build a hybrid cath lab to perform lead extractions safely. What SADS condition do you have, and when...