by kymera_editor | Nov 5, 2019 | CPVT, LCSD, Managing Multiple Diagnoses, Sports/Exercise
Hi! My name is Holly Mulder. I am 29 years old and I have CPVT. I live in Charlotte, NC with my husband and English Bulldog, Oliver. Oliver When I was 22, I started training for my first triathlon. A few years later, I had completed over 20 short...
by kymera_editor | Oct 16, 2019 | Awareness, CPR, ICD, LCSD, Parenting, SADS Spotlight, Sudden Cardiac Arrest, Support Groups
Name: Lila Wolfram Age: 4When was your SCA? October 2015 (8 months old)Which SADS condition do you have? Idiopathic Ventricular TachycardiaHow are you treated? Lila has a Medtronic Evera ICD. She had a left side sympathetic denervation (LCSD) performed at 10 months...
by kymera_editor | Aug 9, 2019 | Camp, Connecting with others, ICD, LCSD, Long QT Syndrome
Since receiving my diagnosis of LQTS Type 5 at the age of 12, I had always wanted to go to a heart camp. The children’s hospital where I received care in Alberta, Canada had posters for a heart camp in California on the wall but when I asked my doctor about anything...
by kymera_editor | Jun 18, 2019 | Advocacy, ICD, LCSD, Long QT Syndrome, Managing Multiple Diagnoses, Online Patient Communities, SADS Spotlight
Name: Alexis Holmgren Age: 18 Which SADS condition do you have? Long QT Syndrome Type 5 When were you diagnosed? In 2013 at age 12 How are you treated? Beta blocker (Nadolol), Spironolactone, Left Cardiac Sympathetic Denervation (LCSD), and a dual chamber ICD with...
