SADS EL-PFDD Adjunct Scientific Meeting

On Tuesday, June 20th, we hosted an Externally-Led Patient Focused Drug Development (EL-PFDD) meeting. EL-PFDD meetings give the FDA, researchers, biopharma companies, health care providers, and federal regulatory partners an opportunity to hear directly from those affected by ARVC.

We’re excited to announce the next step of this process – the Adjunct Scientific Meeting on Thursday, July 20. This meeting is a gathering of the top experts in the field, talking about the next steps for new therapies and treatments for ARVC. This is a really great opportunity to get a sneak peek into what’s on the horizon for ARVC.

This meeting will include speakers and an internationally-recognized expert panel that will highlight what we learned from YOU during the SADS EL-PFDD meeting. Using the testimonials provided at our EL-PFDD, experts will review the unmet needs, gaps in knowledge, and areas where research can have the most significant impact on the quality of life of those with ARVC. 

Our Supporters

Our supporters are helping us to invite families from around the globe to participate

Our Sponsors

These generous supporters have made this meeting possible…On behalf of the SADS Foundation, thank you!