by kymera_editor | Apr 21, 2022 | Long QT Syndrome, Parenting, SADS Spotlight
Stephanie and one of her daughters (who also has LQTS) Back in 1992, I was diagnosed with a condition called Long QT Heart Syndrome. Doctors discovered it through medication interactions, which caused a cardiac arrest. Doctors didn’t know as much about the condition...
by kymera_editor | Jan 11, 2022 | Fundraising, Grief and Loss, Long QT Syndrome, SADS Spotlight
In 1997, my wife and I had three kids. Our son Michael, who was eleven, had fainted twice. The first time, it was explained away by the E.R. and his pediatrician as a vasovagal episode from unusual activities. The second time, he got an EKG and was examined by a...
by kymera_editor | Jan 4, 2022 | Fundraising, Grief and Loss, Long QT Syndrome, SADS Spotlight
In 1999, we got a phone call on a Friday from our son who lived on a college campus where his sister also went to school. We were on vacation. He said that his sister had passed away – he wanted to tell us before the police called us. Nobody knew why she had passed...
by kymera_editor | Dec 14, 2021 | Awareness, ICD, Long QT Syndrome, SADS Spotlight
Can you tell me a little bit about your SADS journey? I was diagnosed with Long QT when I was eight years old, and was able to get genetic testing as an adult to identify that I have multiple LQTS Type 2 mutations. As a child in the ‘90s, the doctors knew very little...
by kymera_editor | Jun 9, 2021 | Awareness, ICD, Long QT Syndrome, SADS Spotlight, Sports/Exercise
At the age of 15 years old, I was a three season athlete in high school: soccer, basketball, and track and field. They were a huge part of how I defined myself – I loved sports. I was in a track and field hurdle event, got dizzy at the finish line, and almost passed...
by kymera_editor | Feb 25, 2021 | Awareness, Connecting with others, Long QT Syndrome, SADS Spotlight
Name: Cynthia Age: 58 years old Which SADS condition do you have? Type 1 LQT When were you diagnosed? Since 2008, over 10 years How are you treated? Toprol How/ when were you diagnosed? My diagnosis began through a routine primary care visit that discovered it through...
