by kymera_editor | Apr 20, 2020 | Genetic Testing, Long QT Syndrome, Parenting, SADS Spotlight
Kristin’s daughter the day she wore her first holter monitor. Name: Kristin Ristine Age: 34 Which SADS condition do you have? Long QT Syndrome Type 1 How are you treated? On beta blockers How/when were you diagnosed? My mom was diagnosed while at the hospital...
by kymera_editor | Apr 7, 2020 | ICD, Long QT Syndrome, Parenting, SADS Spotlight
Natalie in Maui on a snorkeling tour! Name: Natalie J Age: 27 Which SADS condition do you have? Long QT When were you diagnosed? August 2010 How are you treated? (Beta blocker, ICD, etc.) Beta blocker and ICD How/when were you diagnosed? I was diagnosed at 17...
by kymera_editor | Feb 18, 2020 | AEDs, CPVT, Genetic Testing, SADS Spotlight, Sports/Exercise
Bella getting ready to tumble with a heart monitor. GO BELLA! Name: Bella AlvarezAge: 11Which SADS condition do you have? CPVTWhen were you diagnosed? December 2018How are you treated? Beta Blocker (Metoprolol) How/when were you diagnosed? I was diagnosed through...
by kymera_editor | Jan 30, 2020 | Advocacy, Brugada Syndrome, Connecting with others, Heart Hero, ICD, Parenting, Rare Disease, SADS Spotlight, Sports/Exercise
Name: Tisha M. Age: 36 y/o Which SADS condition do you have? Brugada Syndrome When were you diagnosed? 12/27/19 How are you treated? (Beta blocker, ICD, etc.) ICD How/when were you diagnosed? I went to Urgent Care on 12/27/19 with complaints...
by kymera_editor | Jan 13, 2020 | Advocacy, Awareness, ICD, Long QT Syndrome, SADS Spotlight, Support Groups
Name: Jaclyn Kernion Age: 38Which SADS condition do you have? LQTS1How are you treated? Treated with beta blockers from age 14 and AICD implant at age 24 (on my 4th device currently) When were you diagnosed? I was CORRECTLY diagnosed after 9 yrs of fainting and...
by kymera_editor | Oct 29, 2019 | Awareness, CPVT, SADS Spotlight, Sudden Cardiac Arrest
Name: Christian “Cole” InmanAge: 14When was your SCA? May 13, 2016/Sept 17, 2018Which SADS condition do you have? CPVTHow are you treated? Nadolol x2 daily, flecainide x2 daily Can you tell us about your SCA? 1st time I was on a fair ride called the...
