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  • SADS Conditions
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Bats

by kymera_editor | Aug 29, 2017 | Connecting with others, Long QT Syndrome, Sudden Cardiac Arrest

Twinkle, twinkle little bat…… When I was first diagnosed with LQTS, my family found the stories on the C.A.R.E Foundation website.  One in particular- “How to live to be 102 with Long QT”- made an impact on me and my family.  Reading a story of...

Anchor of Support

by kymera_editor | Jul 31, 2017 | Fundraising, ICD, Long QT Syndrome, Sudden Cardiac Arrest

On the morning of June 7th, 2014, our just turned 2-year-old daughter suffered a sudden cardiac arrest in our home. This came as a complete shock to us, as it occurred with no warning whatsoever. Once stabilized in the ambulance in our driveway, she was transported to...

23rd Annual No Ball at All

by kymera_editor | Jun 28, 2017 | Fundraising, Long QT Syndrome, Sudden Cardiac Arrest

This is Abrielle Watschke. In 2014, she survived an out of hospital sudden cardiac arrest. Today, she is thriving with Long QT Syndrome. Read the Watschke family’s story here. Donate to the 2017 No Ball at All Campaign in honor of this amazing...
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