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  • SADS Conditions
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SCA Survivor: Daiana

by kymera_editor | Oct 7, 2020 | CPR, Heart Hero, Long QT Syndrome, SCA Survivor, Sports/Exercise, Sudden Cardiac Arrest

The first time I had my cardiac arrest was February 13th, 2016.   My cardiac arrest occurred when I was at baseball practice and I told my coach I did not feel right and was having a lot of pain.  I thought it was just muscle pain, but I ignored it and...

Sarah’s CPR and AED Story

by kymera_editor | Jun 5, 2020 | AEDs, CPR, CPR and AED Awareness Week, Sudden Cardiac Arrest

Sarah with her family My name is Sarah, I am 55 years old, living in Saskatchewan, Canada. On December 28th, 2018, I was attending the memorial service for my mother-in-law along with my immediate and a few extended family members. I had just finished my tribute and...

SADS Spotlight: Sophie

by kymera_editor | May 21, 2020 | Awareness, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest

Name: Sophie Thatcher Age: 19 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta blockers How were you diagnosed? In 2018, as a junior in high school, I decided to try out for my school’s water polo team as a completely new sport. On the last...

Lily’s Story of CPVT

by kymera_editor | Apr 23, 2020 | Advocacy, CPVT, Parenting, Sudden Cardiac Arrest

Lily and her sister Charlotte My daughter has CPVT. My daughter, Lily, suffered sudden cardiac arrest while swimming in our pool on July 8, 2012. She went without oxygen for an estimated 11 minutes. Lily continues her recovery from the resulting anoxic brain...

SADS Spotlight: Tania

by kymera_editor | Apr 20, 2020 | Genetic Testing, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest

Name: Tania Cselka Age: 53 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta Blockers & ICD How/when were you diagnosed? It all started when my husband woke during the night & found me not breathing. He resuscitated me, called an...

SADS Spotlight: Karin

by kymera_editor | Apr 20, 2020 | CPVT, SADS Spotlight, Sports/Exercise, Sudden Cardiac Arrest

Name: Karin Blåder, from Sweden Age: 33 Which SADS condition do you have? CPVT How are you treated? (Beta blocker, ICD, etc.) Beta blocker (Inderal) and “Tambocor” How/when were you diagnosed? I was diagnosed in the summer of 2019. I passed out at the gym...
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