by kymera_editor | Apr 20, 2020 | CPVT, ICD, Parenting, SADS Spotlight, Sudden Cardiac Arrest
Name: Danielle Age: 38 Which SADS condition do you have? CPVT When were you diagnosed? Oct 2017, after 20 + yrs of misdiagnosis How are you treated? (Beta blocker, ICD, etc.) ICD placed in November 2017, nadolol and flecanide How/when were you diagnosed? I had a...
by kymera_editor | Apr 20, 2020 | Awareness, Brugada Syndrome, Genetic Testing, Schools, Sudden Cardiac Arrest, Uncategorized
Will was 6 years old when he first experienced a fainting episode. He was walking up the hill with his dad & sister one day from school when he fainted. We couldn’t tell if the kids were making it up & playing a joke on dad while I was at work. The next...
by kymera_editor | Dec 2, 2019 | Awareness, Brugada Syndrome, ICD, Sudden Cardiac Arrest
Sissy Sullins living and thriving with Brugada My name is Sissy. I was diagnosed with Brugada Syndrome at age 39. I am now 60 years old. I will begin my story with my daddy. My daddy was very healthy all through his youth. All that anyone could ever remember...
by kymera_editor | Oct 29, 2019 | Awareness, CPVT, SADS Spotlight, Sudden Cardiac Arrest
Name: Christian “Cole” InmanAge: 14When was your SCA? May 13, 2016/Sept 17, 2018Which SADS condition do you have? CPVTHow are you treated? Nadolol x2 daily, flecainide x2 daily Can you tell us about your SCA? 1st time I was on a fair ride called the...
by kymera_editor | Oct 24, 2019 | Advocacy, AEDs, CPR, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest
I am 27 years old and currently living with a SADS condition (Long QT Syndrome). I am always happy to share my story as it sheds light to the importance and necessity of bystander CPR along with the use of an AED. In 2007 I was 16 years old, running the mile at...
by kymera_editor | Oct 21, 2019 | Brugada Syndrome, CPR, ICD, Online Patient Communities, SADS Spotlight, Sudden Cardiac Arrest
Name: Dave Whelan Age: 57 When was your SCA? Feb 10, 2012Which SADS condition do you have? Brugada Syndrome How are you treated? ICD and regular cardiology follow up Can you tell us about your SCA? My SCA occurred while working on a remote mine site in the...
