CPVT Awareness: The Berko Family Story

Every morning I am greeted with the same bittersweet reality. Bitter is just a taste of the eternal emotion of losing a child. Sweet is the ever-present gratefulness that one of our children came back to life after being pronounced dead.   We choose to share our...

LQTS Awareness: Diane and Jimmy’s Story

Jimmy’s dad and I adopted Jimmy when he was six weeks old. He was born with a cleft palette and other conditions that required repeated PE tubes and almost nonstop antibiotic use. His autism and Attention Deficit Disorder became apparent when he was very young. We...

Abby’s Brugada and WPW Story

Can you tell me a little bit about your journey – from diagnosis to where you are now?  It started with stomach issues which led me to the ER, and they did an EKG there. And that’s when all this started because they saw type one Brugada pattern.  I didn’t...

CPVT Awareness: Madalyn’s Story

On December 21, 2022 I was playing tag with my sisters and neighbors when I collapsed in my neighbor’s yard. Thankfully my friends ran for help after my youngest sister found me unresponsive and blue in the face. 911 was called and I was taken to the hospital where I...

Living with ARVC | Julia’s Story

Julia | Living with ARVC       Santa Rosa, CA | Born January 1992 “This is something I’ve had to deal with every single day for more than two years. I have had to mitigate. Life has really had to change. I came out of this a completely different person.” The Sonoma...