by SADS Foundation | Sep 5, 2024 | Blog
Martin – also known as Fast Heart Mart – was diagnosed with Long QT Syndrome (LQTS) at the age of 17 after six years of searching for answers. Now, he’s a professional musician who wants others with LQTS to know that this genetic diagnosis “doesn’t mean the end” – and...
by SADS Foundation | Aug 14, 2024 | Blog
“I’m working with the technology that could have saved his life” Colin Peck’s Story In 2019, Colin Peck lost his brother, Brian, suddenly and tragically to an undiagnosed heart condition. Today, Colin works at Medtronic – a company that makes pacemakers and ICDs – to...
by SADS Foundation | Aug 13, 2024 | Blog
I have always been an active person, particularly when it comes to exploring nature. Throughout my 20s, I was often backpacking, hiking, or going on long bike rides. I first realized something was wrong when I began fainting while running. I couldn’t figure out...
by Erinsads | Mar 29, 2024 | Blog
In June 2024, the SADS Foundation is bringing the LQTS and CPVT patient communities together for an FDA Externally-Led Patient-Focused Drug Development Meeting (EL-PFDD). This meeting gives the FDA and other key stakeholders — including researchers, biopharma...
by Erinsads | Feb 27, 2024 | Blog
In 2016, Andy decided to complete a marathon in all fifty states. He wanted to finish this challenge quickly, and set a goal of running 10-12 marathons each year. In 2020, Andy experienced some concerning symptoms while training – including a high heart rate and...
