by Erinsads | Jan 18, 2023 | Blog
Can you tell me a little bit about your journey? I didn’t run at all growing up. It’s just something I developed an interest for later in life. I accomplished completing both half and full marathons plus I completed one ultra marathon. I was really getting into...
by Erinsads | Oct 13, 2022 | Blog
When Eliott was just nine years old, he had a Sudden Cardiac Arrest (SCA) at an early-morning soccer game. Thanks to the quick action of a pediatric ICU doctor who happened to be watching the game, Eliott received life-saving CPR – and was diagnosed, after a full day...
by Erinsads | Oct 3, 2022 | Blog
Tom and his daughter Meg Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? I’m the first one in my family to have this condition that we know of. I call myself the “mutant” – the one that first had the gene. As a kid,...
by Erinsads | Sep 6, 2022 | Blog
Can you tell me a little bit about your ARVC journey – from diagnosis to where you are today? Jeff & his son at a baseball game I was diagnosed with ARVC in May of 2021, but I got my ICD in August of 2017. Given that ARVC is a genetic disease, I guess I had it in...
by Erinsads | Sep 6, 2022 | Blog
Lizzie Name: Lizzie How and when were you diagnosed? I was diagnosed with ARVC in the middle of a career of ultramarathon running at the age of 31. I started to develop shortness of breath and weakness in my legs during my training runs, and not long after that I...
