by Erinsads | Feb 23, 2024 | Blog
Thirty-nine. That’s how old I am. It’s also the age when my father died. Losing my dad when I was just 11 years old has had a profound impact on me. Not only was I forced to navigate growing up without him, but I was also diagnosed with the same medical condition...
by Erinsads | Feb 22, 2024 | Blog
When Melissa was getting ready to start a family, she wanted to know whether her child would carry the same genetic variant that she had – for a heart condition known as Long QT Syndrome. Thanks to a test called fetal magnetocardiography, Melissa was able to learn...
by Erinsads | Feb 6, 2024 | Blog
A normal summer day at the pool turned into a rare genetic heart condition diagnosis for thirteen year old Ishani. After feeling dizzy, Ishani visited with her doctor, who said she probably had low blood sugar – and suggested she have an energy drink. Two days later,...
by Erinsads | Dec 28, 2023 | Blog
When Meredyth was twelve, she was diagnosed with asthma because she was often short of breath when playing sports. At the time, she played lacrosse and was a competitive swimmer; and her doctor prescribed her an inhaler. “I passed out at a swim meet after that, and I...
by Erinsads | Oct 4, 2023 | Blog
Can you tell me a little bit about your SADS journey – from your first symptom to where you are today? I had an arrhythmia while I was driving in August of 1998. While I was in the hospital, the doctor noticed a prolonged QT interval. My mother had passed away...
