by kymera_editor | Jun 6, 2018 | Long QT Syndrome
Kellie Moore, 30, has Long QT Syndrome Type 2. She was diagnosed during childhood, and she is currently taking a beta blocker. What’s your diagnosis story? How did you find out you have this condition? We first found out about Long QT Syndrome because my grandma had a...
by kymera_editor | Jan 13, 2018 | ICD, Long QT Syndrome, Online Patient Communities, Parenting
For Natalie Moye, what started as a basic wellness check led to a life-changing diagnosis. She was 26, and she had just given birth to her first child, Elliot, 8 weeks earlier. She wanted to lose the baby weight, so she decided to join a weight loss and healthy...
by Erinsads | Aug 27, 2017 | Blog
My name is Angela and I am married with two children ages 2-1/2 and 6 months. Our journey through serious medical uncertainty started when I got pregnant with my 2-1/2 year old son, Azariah. From the onset of my pregnancy things became complicated. At my antimony scan...
by Erinsads | May 15, 2017 | Blog
By: Jett H. My experience with Long QT Syndrome began at about age 7, or at least I think it did. One of the funny things about this condition is you don’t know for sure if it caused you to lose consciousness if you don’t have an EKG or some other kind of heart...
by kymera_editor | Jan 31, 2017 | Long QT Syndrome
Sometimes normal life involves taunting my dogs with donuts on a Sunday morning Sometimes normal life involves having coffee in a hospital after having an ICD pocket revision. I remember the day I got married. It was hot and the tulle of my dress was scratchy...
