by sadsfoundation | Sep 11, 2023 | Blog
I have a strong family history of relatives experiencing “heart attacks” (or perhaps cardiac arrests) and dying at a young age. When I was a kid, I thought everyone eventually died of these “heart attacks”. In my family, the deaths were instant, and happened while...
by Erinsads | Sep 6, 2023 | Blog
About twenty years ago my older sister had an episode that almost took her life. Through this, she discovered she had a genetic disorder they called Long QT. At the time it was very foreign to doctors as well as us. Nobody had ever heard of this. Matter of fact, the...
by sadsfoundation | Sep 1, 2023 | Blog
Jimmy’s dad and I adopted Jimmy when he was six weeks old. He was born with a cleft palette and other conditions that required repeated PE tubes and almost nonstop antibiotic use. His autism and Attention Deficit Disorder became apparent when he was very young. We...
by sadsfoundation | Apr 14, 2023 | Blog
There’s new, exciting, and groundbreaking research on the horizon for SADS conditions. At the SADS Foundation, we’re working with companies who are almost ready to recruit participants for first-of-their-kind clinical trials for these new therapies. Make sure to fill...
by sadsfoundation | Feb 24, 2023 | Blog
Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? I was diagnosed with Long QT Syndrome Type 1 when I was 22 years old. I was born with LQTS but wasn’t aware of it, nor was my family. The reason we discovered my LQTS was...
