by SADS Foundation | Sep 17, 2025 | Blog
When Christie Tolosky died suddenly in 2005 at just 24 years old, her family and friends were in shock. She was a seemingly healthy and active young woman who loved everything about life, especially horses, and who was planning to go back to school for a masters...
by SADS Foundation | Jul 8, 2025 | Blog
Brandon had six “fainting” episodes before the age of ten before he learned that he has Long QT Syndrome, a condition that affects the heart’s rhythm – and that it runs in his family. Today, Brandon is returning to college to learn engineering so he can work on...
by SADS Foundation | Jun 23, 2025 | Blog
by Danielle Mundondo It’s been over five years since I last wrote. That piece was called Holding My Breath. Today, I come to you with its natural follow-up: Letting Go. Alanna is doing well—thankfully, she hasn’t experienced any cardiac events that we’re aware...
by SADS Foundation | Sep 5, 2024 | Blog
Martin – also known as Fast Heart Mart – was diagnosed with Long QT Syndrome (LQTS) at the age of 17 after six years of searching for answers. Now, he’s a professional musician who wants others with LQTS to know that this genetic diagnosis “doesn’t mean the end” – and...
by SADS Foundation | Jun 4, 2024 | Blog
In May of 2022, Summer went into Sudden Cardiac Arrest (SCA) on her front porch. Thanks to her husband’s quick actions, she survived. After her diagnosis of Long QT Syndrome (LQTS) Type 1, Summer is on a mission to spread awareness about CPR – and “invisible”...
