by Erinsads | Jan 17, 2023 | Blog
Can you tell me a little bit about your SADS journey? I was diagnosed with Long QT Type 1 in 2018, following the birth of my twin daughters. About a week postpartum, I had a seizure at home. They think it was due to postpartum preeclampsia, which is pretty rare. In...
by Erinsads | Jan 10, 2023 | Blog
Dawn didn’t know she had Long QT Syndrome until her oldest child, Ella, was diagnosed while doctors were looking for a heart murmur. At the time, Dawn’s family was living in South Dakota; a cardiologist visited the town they lived in once every three months. Her...
by Erinsads | Jan 6, 2023 | Blog
Can you tell me a little bit about your SADS journey? I’ve always fainted for no reason, maybe once or twice a year. It was either unprovoked or something simple such as tripping, getting hurt, or even being stung by a bee and I would faint. Growing up, there...
by Erinsads | Jan 5, 2023 | Blog
Can you tell me a little bit about your SADS journey? I had passed out a few times as a teen. When I was 18, I had been home alone, sick all week. I went into school for the day that week and was walking up the stairs. I remember seeing dots and being told that I had ...
by Erinsads | Dec 9, 2022 | Blog
In 2016, Babett’s daughter, Joriale, passed away from LQTS. This year, her book about her family’s journey was published – helping Babett spread awareness in honor of her daughter. In January of 2016, my daughter, Joriale, passed away from Long QT Syndrome. Nine...
