SCA Awareness Month: Eliott’s Story

When Eliott was just nine years old, he had a Sudden Cardiac Arrest (SCA) at an early-morning soccer game. Thanks to the quick action of a pediatric ICU doctor who happened to be watching the game, Eliott received life-saving CPR – and was diagnosed, after a full day...

LQTS Awareness: Jackie’s Story

Jimmy, Jackie’s son Crissy, Jackie’s daughter Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? It was so common for our family to fall over having seizures, and back in the 1960s, they weren’t thinking...

ICD Stories: Katie Wildhagen

Can you tell me a little bit about your SADS journey? In the spring of 2000, I went into sudden cardiac arrest. After about four weeks of testing, they finally realized I had Long QT Syndrome. I went for six months without a device. My mom really advocated for me, and...

Mona: My Journey with LQTS and Cancer

In 2003 I was a very physically fit female Firefighter/Paramedic who was running full Marathons. I was 35 years old, a 14-year veteran of the Fire Service with not one event that would indicate I had any cardiac issue at all. Then, after a routine physical conducted...

Keona: In Memory of Elijah and Chloe

Can you tell me a little bit about your family’s SADS journey? I have one surviving daughter, who is 14 and has Long QT Syndrome. In my family, we have an aunt with Long QT Syndrome – who is the only reason that I ever knew my son had it, which led to me knowing I had...