by SADS Foundation | Jul 8, 2025 | Blog
With this blog, I want to begin something that has lived inside me for a long time. I’m sharing the story of our daughter Liv because I feel it deserves to be told. Not just to raise awareness for a rare condition like LQTS, but also to show how much love, hope, and...
by SADS Foundation | Jul 1, 2025 | Blog
The SADS Foundation encourages families to take a medical history of their immediate and extended family. What follows is a prime example of why. Patrei, a mother of three, didn’t know Long QT ran in her family until 2020, but her aunt Heidi was diagnosed in 1990. How...
by SADS Foundation | Feb 24, 2025 | Blog
In May of 2020, Elizabeth’s close friend passed away suddenly and unexpectedly. She tried to think of a way to support his family after this tragic loss – and wanted to give them a gift that didn’t involve food or flowers, since both are temporary. That’s when...
by SADS Foundation | Feb 18, 2025 | Blog
written by Landri My day-to-day life generally consists of school, friends, playing video games, and participating in activities that interest me. Unlike the average teenager, one of my favorite things about school is learning new things and applying that knowledge in...
by SADS Foundation | May 23, 2024 | Blog
Adeline was diagnosed the day after birth with Long QT Syndrome Type 2. Now, Adeline is one of ten Children’s Miracle Network National Champions, and is sharing her LQTS story on a Cheerios box in Costco throughout the month of May. “Adeline was born a healthy,...
