by SADS Foundation | Feb 24, 2025 | Blog
In May of 2020, Elizabeth’s close friend passed away suddenly and unexpectedly. She tried to think of a way to support his family after this tragic loss – and wanted to give them a gift that didn’t involve food or flowers, since both are temporary. That’s when...
by SADS Foundation | Feb 18, 2025 | Blog
written by Landri My day-to-day life generally consists of school, friends, playing video games, and participating in activities that interest me. Unlike the average teenager, one of my favorite things about school is learning new things and applying that knowledge in...
by SADS Foundation | May 23, 2024 | Blog
Adeline was diagnosed the day after birth with Long QT Syndrome Type 2. Now, Adeline is one of ten Children’s Miracle Network National Champions, and is sharing her LQTS story on a Cheerios box in Costco throughout the month of May. “Adeline was born a healthy,...
by Erinsads | May 15, 2024 | Blog
written by Melissa If you’re anything like me, hearing the term “clinical trial” generates some conflicting reactions. There’s excitement over the possibility of a game-changing treatment on the horizon, and at the same time, there’s some fear in the idea of...
by SADS Foundation | Apr 9, 2024 | Blog
Nicole was diagnosed with Long QT Syndrome Type 1 at birth. Today, she’s in her last semester of medical school – and hopes to help others with rare diseases and disabilities access the support and expert medical care she received as a child with a SADS condition....
