LQTS Awareness: Piper’s Story

Can you tell us a little bit about your SADS journey – from diagnosis to where you are now?  I’ve always played competitive sports my whole life. When I was 14, during a preseason, I had a Sudden Cardiac Arrest. I got to the ER right away and got...

LQTS Awareness: Jack’s Story

Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? I remember having episodes in early grade school. I would get in trouble all the time for “daydreaming.” Many decades later this turned out to be Ventricular Tachycardia. I...

SCA Awareness: Daniela’s Story

Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? I was diagnosed with Long QT Syndrome Type 1 when I was 22 years old. I was born with LQTS but wasn’t aware of it, nor was my family. The reason we discovered my LQTS was...

Genetic Testing: Stories from the Community

In November 2022, we asked people to share their stories as they took our genetic testing survey – and we are so grateful for everyone who talked with us, wrote down their story, or left us a voicemail! Here are some of the stories shared by the SADS community....

LQTS Awareness: Allison’s Story

Can you tell me a little bit about your SADS journey? I was diagnosed with Long QT Type 1 in 2018, following the birth of my twin daughters. About a week postpartum, I had a seizure at home. They think it was due to postpartum preeclampsia, which is pretty rare. In...