by Erinsads | May 15, 2024 | Blog
written by Melissa If you’re anything like me, hearing the term “clinical trial” generates some conflicting reactions. There’s excitement over the possibility of a game-changing treatment on the horizon, and at the same time, there’s some fear in the idea of...
by SADS Foundation | Apr 9, 2024 | Blog
Nicole was diagnosed with Long QT Syndrome Type 1 at birth. Today, she’s in her last semester of medical school – and hopes to help others with rare diseases and disabilities access the support and expert medical care she received as a child with a SADS condition....
by Erinsads | Dec 28, 2023 | Blog
When Meredyth was twelve, she was diagnosed with asthma because she was often short of breath when playing sports. At the time, she played lacrosse and was a competitive swimmer; and her doctor prescribed her an inhaler. “I passed out at a swim meet after that, and I...
by Erinsads | Jun 8, 2023 | Blog
Can you tell me about your SADS journey- from diagnosis to where you are now? I’m originally from Guam. Moved to the states with my mom & dad when I was 8 years old. When I was six years old, my mom and I were on our way to a fiesta party. I was in the...
by Erinsads | May 10, 2023 | Blog
I’ve known about my Long QT type 1 diagnosis for as long as I can remember. My mom, only after having my first sibling, Calvin, prematurely and running extra health tests, found out our genetic line had it. She then passed down the trait to her next two children,...
