by Erinsads | Aug 5, 2018 | Long QT Syndrome, Parenting
by Kellie Kotraba Moore When life becomes a blur of sleepless nights, round-the-clock feedings, diaper changes, and newborn snuggles, it’s easy to put aside self-care and focus all of our energy on the new baby. While it might seem noble to sacrifice our own...
by kymera_editor | Jun 15, 2018 | Connecting with others, CPVT, HCM, ICD, Long QT Syndrome, Research, Sports/Exercise, Sudden Cardiac Arrest, Timothy Syndrome, Uncategorized
Seeing the doctor is always stressful. It’s even more so when you’re from out of state (like me) or even out of country. It can be very overwhelming. I admin a group and we get a lot of questions from people asking what it’s like, where to stay,...
by kymera_editor | Jun 6, 2018 | Long QT Syndrome
Kellie Moore, 30, has Long QT Syndrome Type 2. She was diagnosed during childhood, and she is currently taking a beta blocker. What’s your diagnosis story? How did you find out you have this condition? We first found out about Long QT Syndrome because my grandma had a...
by SADS Foundation | Mar 6, 2009 | Blog
Jeff Stichler anxiously watched as emergency room doctors feverishly worked to get a steady heartbeat on his wife on Oct. 17, 2008. Even after numerous electric shocks to her chest, Melanie Stichler remained in a vegetative state and no one knew what caused her to...
