by kymera_editor | Apr 20, 2020 | Brugada Syndrome, Uncategorized
Name: Tenier Sims Age: 43 Which SADS condition do you have? Brugada Syndrome When were you diagnosed? October 2018 How are you treated? Currently being monitored How/when were you diagnosed? I was diagnosed when I became so fatigued that I couldn’t walk, so I went to...
by kymera_editor | Apr 16, 2020 | Uncategorized
Paula and her son Name: Paula Best Condition: Long QT Syndrome Diagnosed: 1999 aged 17 Treatment: Beta Blockers – 160mg Propanol per day What has been the biggest challenge you’ve faced in living with your diagnosis? When my son was born last August, he...
by kymera_editor | Mar 18, 2020 | Uncategorized
The SADS Foundation thanks Samantha Wilder for being a part of the SADS Foundation Heart Bowl during the month of February and bringing in the most donors for this campaign!! Name: Samantha Wilder Age: 30 Which SADS condition do you have? Long QT Syndrome, Type 1...
by kymera_editor | Jun 15, 2018 | Connecting with others, CPVT, HCM, ICD, Long QT Syndrome, Research, Sports/Exercise, Sudden Cardiac Arrest, Timothy Syndrome, Uncategorized
Seeing the doctor is always stressful. It’s even more so when you’re from out of state (like me) or even out of country. It can be very overwhelming. I admin a group and we get a lot of questions from people asking what it’s like, where to stay,...
by kymera_editor | Aug 17, 2017 | Uncategorized
A list of abbreviations commonly used in cardiology. DFT- Defibrillation threshold testing VT- Ventricular tachycardia VF- Ventricular fibrillation AF- Atrial fibrillation EKG/ECG- Electrocardiogram PVC- Premature Ventricular Contraction PAC- Premature Atrial...
by kymera_editor | Jun 29, 2017 | Uncategorized
Questions to ask at ep/cardiologist appointments: Why am I consider at this risk level at the current time? Will my risk level change overtime? Or will the risk level remain the same all the time? What are the treatment options? Why am I being started on this...
