by kymera_editor | May 26, 2017 | Uncategorized
My story begins when I was 11 years old. When I was 11 years old, I had passed out while walking up a flight of stairs in school. I did not know what had happened until I got to the ER in the hospital. I was later told CPR needed to be perform on me. At, this time...
by kymera_editor | May 12, 2017 | Uncategorized
Are you a patient affected by a SADS Condition? Are you a parent or sibling or other family member of someone affected by a SADS condition? Are you a doctor, genetic counselor, researcher, or other professional who would like to help contribute to a resource for SADS...
by kymera_editor | Apr 29, 2017 | CPVT, Uncategorized
If you haven’t already I want you to take a look at that photo. It’s special. Not because of what’s there, but because of what isn’t. Honestly this is a once in a lifetime photo, because the event in this photo changed my life forever. Have you...
by kymera_editor | Feb 1, 2017 | Uncategorized
I had a patient in the emergency department present with anaphylaxis to a bee sting. She thankfully, had her own epi pen with her and had been anticipating this moment for over a decade after discovering her allergy to bees. But what she said was interesting. She got...
by kymera_editor | Jan 25, 2017 | Uncategorized
This blog is for you. We hear your questions posted on other forums and can’t always answer them. So let’s hear them again. What keeps you up at night? While this blog is not intended to provide individualized medical advice and cannot be a...
by kymera_editor | Jan 20, 2017 | Uncategorized
Here is my story – after a brief fainting episode during an exercise class 3 years ago I wound up getting a stress test and noticed my own ST segments looked funny. That led to an ECG that demonstrated a QTc of 513 and a new diagnosis of long QT syndrome. I...
