by kymera_editor | Aug 29, 2017 | Connecting with others, Long QT Syndrome, Sudden Cardiac Arrest
Twinkle, twinkle little bat…… When I was first diagnosed with LQTS, my family found the stories on the C.A.R.E Foundation website. One in particular- “How to live to be 102 with Long QT”- made an impact on me and my family. Reading a story of...
by kymera_editor | Aug 27, 2017 | Long QT Syndrome, Managing Multiple Diagnoses
Azariah getting an EKG Our Family Our precious Azariah My name is Angela and I am married with two children ages 2-1/2 and 6 months. Our journey through serious medical uncertainty started when I got pregnant with my 2-1/2 year old son, Azariah. From the onset of my...
by kymera_editor | Aug 26, 2017 | ICD, Online Patient Communities, Support Groups
The trolls used the night from August 28th to August 29th 2014 well. When I – the founder and administrator of the Living with an ICD Facebook Support Group- was sleeping peacefully, one of the troublemakers wrote a short post about Implantable...
by kymera_editor | Aug 17, 2017 | Uncategorized
A list of abbreviations commonly used in cardiology. DFT- Defibrillation threshold testing VT- Ventricular tachycardia VF- Ventricular fibrillation AF- Atrial fibrillation EKG/ECG- Electrocardiogram PVC- Premature Ventricular Contraction PAC- Premature Atrial...
by kymera_editor | Jul 31, 2017 | Fundraising, ICD, Long QT Syndrome, Sudden Cardiac Arrest
On the morning of June 7th, 2014, our just turned 2-year-old daughter suffered a sudden cardiac arrest in our home. This came as a complete shock to us, as it occurred with no warning whatsoever. Once stabilized in the ambulance in our driveway, she was transported to...
