by kymera_editor | Jun 29, 2017 | ICD
In the event I should get therapy (shock) from the ICD, what should I do? Should I just call the office and wait for response? Should I go to the ER? Did I have any episodes? If yes, what rhythm was I in when those episodes happen? What is going to done to prevent it...
by kymera_editor | Jun 29, 2017 | Uncategorized
Questions to ask at ep/cardiologist appointments: Why am I consider at this risk level at the current time? Will my risk level change overtime? Or will the risk level remain the same all the time? What are the treatment options? Why am I being started on this...
by kymera_editor | Jun 28, 2017 | Fundraising, Long QT Syndrome, Sudden Cardiac Arrest
This is Abrielle Watschke. In 2014, she survived an out of hospital sudden cardiac arrest. Today, she is thriving with Long QT Syndrome. Read the Watschke family’s story here. Donate to the 2017 No Ball at All Campaign in honor of this amazing...
by kymera_editor | Jun 12, 2017 | Long QT Syndrome
My daughters have a life-threatening condition and on most days, I’m not worried. Should I be worried? My sister, Christie, died suddenly when she was 24 years old. So, you’d think I would be even more worried about my kids, right? I feel safe, and I feel...
by kymera_editor | May 26, 2017 | Uncategorized
My story begins when I was 11 years old. When I was 11 years old, I had passed out while walking up a flight of stairs in school. I did not know what had happened until I got to the ER in the hospital. I was later told CPR needed to be perform on me. At, this time...
