by kymera_editor | Feb 14, 2018 | Advocacy, HCM, Long QT Syndrome, Parenting, Sudden Cardiac Arrest
My heart breaks every time that I hear of a child dying suddenly from an undetected heart condition. How does one recover from knowing that if a diagnosis was made, their child may be with them today? I don’t have that answer, but unbelievably found myself...
by kymera_editor | Feb 10, 2018 | Long QT Syndrome, Parenting
Note from SADS Channel: we recently posed the question of ‘how does your family handle deciding if meds are ok to take?’ to several LQTS families. Their answers can be found here. This is Kat’s answer, which we thought needed to be its own post!...
by kymera_editor | Jan 30, 2018 | Long QT Syndrome
When you don’t have any known health conditions or allergies, finding an over-the-counter (OTC) medication to treat a minor illness is fairly simple. You can go to a pharmacy, scan the aisles until you find the right section, and grab a box that lists all the...
by kymera_editor | Jan 23, 2018 | ICD, Long QT Syndrome, Parenting, Sudden Cardiac Arrest
WHEN PIGS FLY As the loud telephone ring startles me from my sleep, I inexplicably collapse to the floor and am rushed to the hospital where my heart monitor repeatedly goes crazy with bouts of cardiac arrest as I am inappropriately treated for a gamut of suspected...
by kymera_editor | Jan 13, 2018 | ICD, Long QT Syndrome, Online Patient Communities, Parenting
For Natalie Moye, what started as a basic wellness check led to a life-changing diagnosis. She was 26, and she had just given birth to her first child, Elliot, 8 weeks earlier. She wanted to lose the baby weight, so she decided to join a weight loss and healthy...
