by Erinsads | Jan 18, 2023 | Blog
Can you tell me a little bit about your SADS journey? I was diagnosed with Brugada Syndrome in 2019 and subsequently had an S-ICD implanted. My journey to my diagnosis, especially in regards to genetic testing is somewhat unique given that I am adopted and have no...
by Erinsads | Jan 18, 2023 | Blog
Can you tell me a little bit about your journey? I didn’t run at all growing up. It’s just something I developed an interest for later in life. I accomplished completing both half and full marathons plus I completed one ultra marathon. I was really getting into...
by Erinsads | Jan 17, 2023 | Blog
Can you tell me a little bit about your SADS journey? I was diagnosed with Long QT Type 1 in 2018, following the birth of my twin daughters. About a week postpartum, I had a seizure at home. They think it was due to postpartum preeclampsia, which is pretty rare. In...
by Erinsads | Jan 10, 2023 | Blog
Dawn didn’t know she had Long QT Syndrome until her oldest child, Ella, was diagnosed while doctors were looking for a heart murmur. At the time, Dawn’s family was living in South Dakota; a cardiologist visited the town they lived in once every three months. Her...
by Erinsads | Jan 6, 2023 | Blog
Can you tell me a little bit about your SADS journey? My oldest daughter Madeline and I are both affected by ARVC. We’re a very active family and have always been involved in sports. Maddie was in soccer, basketball, gymnastics and dance. Very competitive, very...
by Erinsads | Jan 6, 2023 | Blog
Can you tell me a little bit about your SADS journey? I’ve always fainted for no reason, maybe once or twice a year. It was either unprovoked or something simple such as tripping, getting hurt, or even being stung by a bee and I would faint. Growing up, there...
