by Erinsads | Nov 14, 2022 | Blog
In 2001, Mike’s sister, Jackie, passed away at the age of 31 from undiagnosed ARVC. Mike, his brother, and Jackie’s husband, Adam, formed a support network for affected individuals and their families. Adam is cycling across Canada to raise awareness of ARVC, connect...
by Erinsads | Nov 10, 2022 | Blog
Jordan was a happy, healthy, and beloved 26-year-old when he died suddenly from an undiagnosed SADS condition in November of 2019. “I had never even heard of SADS conditions until we lost Jordan and read the acronym ‘SADS’ on the coroner’s report,” says his mother,...
by Erinsads | Nov 10, 2022 | Blog
Can you tell me about your family’s SADS journey, from diagnosis to where you are today? When I was 30 years old, I had a Sudden Cardiac Arrest. I had no prior knowledge that I had a heart condition. I was six weeks postpartum at the time from my fourth child, and my...
by Erinsads | Nov 1, 2022 | Blog
Can you tell me little bit about your ARVC journey – from your diagnosis to where you are today? I was 34 years old when I started to have symptoms like palpitations and nearly passing out while exercising. I had multiple tests and saw multiple physicians. I was...
by Erinsads | Oct 13, 2022 | Blog
When Eliott was just nine years old, he had a Sudden Cardiac Arrest (SCA) at an early-morning soccer game. Thanks to the quick action of a pediatric ICU doctor who happened to be watching the game, Eliott received life-saving CPR – and was diagnosed, after a full day...
by Erinsads | Oct 3, 2022 | Blog
Tom and his daughter Meg Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? I’m the first one in my family to have this condition that we know of. I call myself the “mutant” – the one that first had the gene. As a kid,...
