by Erinsads | Sep 19, 2022 | Blog
Jimmy, Jackie’s son Crissy, Jackie’s daughter Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? It was so common for our family to fall over having seizures, and back in the 1960s, they weren’t thinking...
by Erinsads | Sep 6, 2022 | Blog
Can you tell me a little bit about your ARVC journey – from diagnosis to where you are today? Jeff & his son at a baseball game I was diagnosed with ARVC in May of 2021, but I got my ICD in August of 2017. Given that ARVC is a genetic disease, I guess I had it in...
by Erinsads | Sep 6, 2022 | Blog
Lizzie Name: Lizzie How and when were you diagnosed? I was diagnosed with ARVC in the middle of a career of ultramarathon running at the age of 31. I started to develop shortness of breath and weakness in my legs during my training runs, and not long after that I...
by Erinsads | Sep 2, 2022 | Blog
Sandy and her son, Jackson SADS billboard placed by Sandy in Binghamton, NY Sandy Cowin is on a mission to raise awareness about Brugada Syndrome – a rare genetic cardiac condition that affects the heart’s electrical system. She’s raised awareness through sharing her...
by Erinsads | Aug 25, 2022 | Blog
My story would probably best be described as a roller coaster, with lots of ups and downs. I grew up between two brothers, and we did everything together. We played from sunup to sundown – basketball, football and baseball, and we had a pool, so we swam...
by Erinsads | Aug 25, 2022 | Blog
Brian was a junior and on the dean’s honor list at the University of Wisconsin-Madison, studying biomedical engineering and computer science. He truly loved his college experience and formed an amazing second family away from home. We are comforted knowing he was the...
